Friday, June 29, 2012

Hi..my name is Trouble On

The lil rascal has become quite the terror now, very strong legs and hands. His play station, where he usually hangs out has become his fave target. Gabe can actually use his hands and legs together to lift the play station till it tilts dangerously to one side then tilts over to fall...yes we've seen it many times...and here's proof of it tumbling over today while i was away at my laptop


Then, i saw that he had nothing to play already, so his new game is to go to the TV rack area and pull whatever he can from there, and he knows well he isn't supposed to go there. Makes him even more motivated when we say no...and usually when he can't pull the stuffs, he rolls further to reach the curtains...


i have lost count of the number of times a day i have to drag him from this place back to his mattress.

Also, as i mentioned before, he is very very often in a supported sitting position nowadays. He'll sit for awhile, then get tired and lie back down, but gets back up shortly, i guess the views better when you're sitting?




He can army crawl abit if you put something worth his while in front of him to reach. Like my iphone or Daddy's electric dictionary. It's sort of like a freestyle stroke. He turns body sideways abit, then reaches out hands on one side, then stretches fully to get the length and move abit:)...i'll try to catch that on video soon to show.

And, changing his diaper is a horror now, coz he keeps trying to escape by rolling away...poor Daddy often gets the worst of it...ahahah

Naughty boy we have here....enjoy ur weekend all....

Wednesday, June 27, 2012

June Doc visit

Gabe had his check up today, all is well, his oxy level is maintained at 75%, still OK. But Dr H told us that right now, they plan to have Gabe do the surgery before winter. Reason being is that it'll be cold then and it may affect Gabe's oxy level to go down abit. So they do not want any unforeseen problems, so it would be ideal to do it before Nov/Dec...

This surgery is the one that he was supposed to do at 10kg. But, seeing that he'll be unable to wait till then, they can perform it on him as long as he is above 7kg. So hopefully he gains abit more weight by Nov to reach say 8kg that is ideal.

During this op, they will repair his malfunctioned valve with an artificial or human tissue valve. And also repair the hole in his heart. The after that he should be in good health and oxy levels near 100% if all goes well.

It's good and bad news....bad that he will need to do ANOTHER op this year, yet good that after this he'll be near 100% and i won't have to panic or stress everytime he cries too long and hard. Also that would mean after recovery we can start flying again!!! yay!!!!! But more importantly, it would mean that he will have enough strength & stamina to do more therapy and be able to do more strenuous tasks like crawling and standing. I'm also hoping his growth rate will be faster after this, and his appetite increases.

So yeah the good surpasses the bad, so we are looking forward to having our precious baby near 100% in good health.

Cmon baby, let's eat n eat to put on that weight yah...

Tuesday, June 26, 2012

Nursery School Headaches

In my opinion, there is never a PERFECT school for your kid, coz every school will surely have some bad or good points. It's just whether the good outweighs the bad. We all have expectations of our children, we want the best for them. I'm no different. Obviously Gabe isn't gonna be a scientist or doctor or lawyer one day.

Terry & I are both very realistic about this. Our main aim is to provide Gabe with the best early intervention he can get. Also, for him to mix around with kids his age, both special and regular kids. We initially didn't think of sending him so early. But, with my Jap lessons starting in July, i don't think i will have time to do my homework & study, and at the same time looking after him full-time. So we thought it best to start him at nursery 2 days a week first.

Initially, i started looking at private nursery schools and daycare. But after writing to a few, they rejected us because the simply did not have the facilities and staff to care for a special child. I was feeling desperate n dejected. Already everything is so hard here in Japan coz of the language barrier.

I surfed the internet further and found this website called Pigeon Hearts Kids world. So happens they have a daycare right near my place just 5mins away. So i brought Gabe there. Nothing fanciful but decent. And the teacher could speak English. Classes are done in both languages. And for the 1 year olds, there are only 2 in the mornings but 8-10 in the afternoons. Pretty low number i guess. Fees are about JPY45,000 per month, for 2 days a week, 7 hours each day. I can choose how many hours i want. I know putting him there 7 hours a day seems kinda long but i wanted to do my own stuff too. So instead of sending him everyday, i wanted it to be just 2 days.

Then, we found an International school, for ages 0mths up to middle school. I thought, perfect. So i contacted them and we made a tour of the school today, Yamato International. It's a really nice school, and both special and regular kids get to mix together. Total number of kids under 5 is around 25. They even have a school bus to pick kids up from certain places. And...they even have physical therapy sessions!! And they have a roof-top garden with artificial grass that Gabe can pluck at...Wow right???

Unfortunately, there are some disadvantages:
1) They have the following 1time non-refundable fees:
Application Fees: JPY10,000
Registration Fees: JPY250,000
Building Fees: JPY200,000
Building development Fees: JPY100,000

Total Fees non refundable: JPY560,000 (abt SGD 9,100)

Annual Tuition Fees: JPY680,000 (about SGD11,000) (school from 8.30am-3pm)
After 3pm, daycare fees: JPY1500 (p/hour)

Physical Therapy sessions 1 time: JPY 1,000 about

2)For Gabe's age group 0mths-2yrs old, there are now 2 kids, both normal kids. Good right, means teacher can focus more on Gabe. But somehow this very low number keeps nagging at me, maybe too low, not so many parents want to send their kids there????? And i think the teacher may not be certified special needs teacher, so maybe they will not know how to deal with Gabe.

3) When we went there, the whole school seemed very very quiet. I saw 1 kids only at first. when we were about to leave we say maybe another 5 kids...but this is a Tuesday ler..school day wor...why so few kids?? And it's up to middle school, eg Grade 8...ok..spooky...worrying...

4)The main language is English here and only English until elementary school where they have Japanese lessons as an option..not too ideal, seeing that Gabe will be here permanently. So he definitely needs to learn it.

5)On paper it looks perfect, all the photo albums, video introduction, wall paintings...but somehow...it isn't reflected in the environment i saw today at the school...like ghost town.

So yeah...very mixed feelings...i think perhaps this is not gonna be THE ONE for Gabe.

Next we headed to this "daycare" called Sophia, not too far from our area....umm..when we arrived there, yes it was a daycare...for the elderly..many of whom were watching TV wen we got there..oops!! No wonder all of them were staring at us, probably wondering which one of us wanted their service, me, terry or Gabe? ahaah...funny..wonder what Gabe was supposed to do there..massage their toes?

Gabe's therapist recommended us to a special kids daycare, Wanpaku, also near our home, 2 stations away. This one is semi-govmt. I can send Gabe there from 1-5 times a week, 4 hours each day. The good thing is that the people here probably would know best how to deal with Gabe since the kids here are all special needs, so i probably wouldn't have to worry too much. Perhaps they can even help with his feeding issue. And, coincidentally a friend of mine also sends her child here and gave good feedback about this center. The teacher to student ratio is low, 8 teachers to about 10 students...really nice. My only worry is that coz it's an area where all children play together and i think it's not really huge, when one child gets sick, Gabe would probably get it too...so we're gonn ask Dr H tomorrow how severe is a common cold or cough for Gabe. I don't wanna put him too much at risk.

I guess all nurseries will pose a certain health risk since there are kids there, but i'm just worried the consequences may be more severe for Gabe due to his heart problems. So, we're just gonna make sure with Dr H. And like i say, there will always be something negative or bad about every school you choose, so we'll just have to see what is the best situation for Gabe.

We have not decided yet on which we will want to choose...toughie...

In the future, if his development is not severe, we can choose to send him to normal mainstream Japanese schools, but that's kinda like years down the road. So right now, we just want Gabe to enjoy socialising....Gabe, oh Gabe...what are we to choose?

Sunday, June 24, 2012

Getting Stronger

Hey ya everyone, how are you? Gabe has been really happy dandy. And very naughty. Those 3am wake up n play activities are still ongoing. I give up trying to figure out how to stop it...sometimes just go with the flow...sigh.

Development wise, he's now sitting up alot, mostly with his hands supporting. But now he can sit for much longer and with 1 hand support too. Unsupported sitting is good too, just not that long. But i think it's gonna be soon coz now everytime he rolls here n there, it ends up into a sitting position. So that's how i know each day he's getting stronger and soon, he'll be able to sit really long by himself...well done Gabe. I think this has got to do alot with the Gymboree classes we've been going to each week and the exercise i make him do at home whenever i am free. Just putting him into sitting position in front of me, his back to my front. The get him to play with toys, then i slowly move away abit so he sits unsupported. And mostly nowadays we put him sitting first instead of lying down, then it's up to him what he chooses...

Speaking of Gymboree, i think this is one of the best choices we made for him so far. His legs have gotten so much stronger and previously, when u hold him up with his feet on the floor, it's always on tippy-toes. His feet were never flat on the floor. Then his teacher taught me how to use this medium-sized blow-up balloon roller. I put Gabe tummy down on it, with his feet dangling. The i hold him under his arms and roll him front n back. So each time we roll back, his feet will touch the ground, and he uses it to push off, plus it gives him the chance to put his feet flat...and it really is working. I can see the improvement already. So hopefully he'll be able to stand soon.

Feeding wise, it's still torture for me. But there's only so much i can do. So, i decided to buy "ikura" (fish eggs), very nutritious..and since he eats such small amounts of solids, i thought it may as well be packed to the max...plus it's fatty too. And he loves avocados...that's probably about the only thing with cereal that he finishes..the rest, he'll spit out or refuse after few spoons..Tofu too he's ok. So i think we'll just stick to these few until he can eat much more.

So yeah...it's still tough. And i'm still stressed. But what more can i do? If you have any great advise, yes, please do share....

Here are some pics, enjoy

The 3 of us..


1st time sitting in trolley...maybe that's why the expression???


Listening to something Daddy saying..


Telling Daddy he wants to get up..


Gymboree time...sitting in a boat




Just being a cutie pie


Ikura....yummy yummy, fatty fatty


His fave yogurt..strawberry...gave him the fruit n veggie one, he spit it out..terrible boy. Also to fatten up, this is strategy #2. After lunch i stuff him with 1 of these...


And the boy is smart...he loves his snacks as in like really love. It's the fruit puffs...everytime we go out i make sure i have those. The other day we went to church and for 1.5hrs, he was good..coz i kept stuffing his mouth with the puffs until there was none. In restaurants if you give him this you could probably buy like 15-20mins i think of good behavior. And you should see him chew the puffs and JApanese rice crackers..the boy's a pro...but when it comes to porridge and soft carrots in tiny bits, he refuses to chew n spits the bits out...even tiny itsy meat pieces, he just refuses to chew...i'm in trouble, serious trouble..

Well, so that's that...see what i have to deal with...i found a few more white hairs recently. Not surprising.

P/S: Tuesday we're visiting a special kids school. Will tell you all about out current headache in searching for daycares n nusrseries for Gabe...till then tata...

Thursday, June 14, 2012

What a Difference a Year Makes (Happy 1 Yr old Gabe)

"Your son has Downs Syndrome"...those words that changes your life forever. That was a year ago when we found out Gabe had DS...i look back and still remember the heart ache then...how unprepared we were, how shocking everything turned out. I was looking at some of his old photos, some just within days of him being born..and realised i never shared 2 photos:

This one, i remember clearly. Gabe was barely few hours old. He was taken away to another hospital and i couldn't sleep after hearing the news. So i messaged Terry and told him that i didn't have Gabe's photo to look at him. He took this photo of Gabe in the NICU there..and i remember staring at this photo so many times, praying he'd be ok. It was my 1st photo of Gabe that i had...


This one was taken when i visited Gabe at NICU the next day. He looked so tiny n helpless....heartbreaking


But now, a year later, we're on a better road. Things are looking up, we're still learning but we're getting there. Gabriel is a cheerful, happy n temperamental boy. Yells n shouts now when he's angry. Can even fake cry to get me to go to him...

We're getting stronger aren't we Gabe boy. Lots of therapy and homework to do, but we'll manage somehow.

Still, there are lots of things i wish...I wish i could sleep for 8 hours straight. I wish Gabe ate tons of solids, I wish he'd start sleeping through the night instead of waking 2 times (Rach said some of her friends' kid still wakes to feed at 2yrs old..yikes....) and mostly i wish he'd put on more weight so he can do his major op sooner n get well.

But perhaps it'll all come together in time...meanwhile i have this cute lil baby whom i love dearly with all my heart n soul. Stay healthy n strong baby. Keep on smiling like there's no tomorrow. Know how much Mummy & Daddy adores you. You are always on our minds n in our hearts. Know how much your grandparents, aunties n uncles n cousins love you, rascal...

Sorry there's no big celebration..we'll do a big one for your 2nd Birthday ok?

But more important, we DID celebrate, jus a small one..at home...i bought a BAskin Robbins ice cream cake Winnie The Pooh themed...waited for Terry to come back and we sang "Happy Birthday" to lil boy. Mummy blew out the candle on behalf. Gabe had a small slice of cake. He requested for seconds, but i told him tomorrow...

1 year old..we keep telling him that he's a big boy now, and has to be good...think he understands???? We'll see...

Grow well, precious.

Happy 1st Birthday Gabe

Loving you always
Mummy & Daddy

















Tuesday, June 12, 2012

Disneyland Fun

It's a totally Happy Day for us today. We stayed over at Disneyland Hotel in an Alice in Wonderland room..yah expensive but so so worth it. It was a double celebration trip for Gabe & I, so we decided to burn a medium sized hole in Daddy's pocket. Aiyah, once only wot....

So we got up as usual on Monday and packed, then headed off by 9.30am. Mummy was practically grinning from ear to ear, bouncing about excitedly. Reached the resort at about 11am and tried to check in but the room wasn't ready so we were told to leave our bags and come back at 3pm. So, not wasting any time, we bought our park tickets n went into Disneyland. What i like about weekdays is that you don't have to walk through tons of bodies and queue like mad to eat or buy things. But, even on a Monday, there were quite alot of people.

The feeling you get once there, it's like a fairytale..so colorful, vibrant and unbelievable. I'm a sucker for Disneyland...Hubby said we should eat first since it was 11.30 already, so we ended up queuing for 20mins at the Crystal Palace restaurant where we had buffet. Food was Ok only..Gabe had his bread and pasta too. After lunch with our tummies full, we started our exploration, first at the Cinderella Castle...The queue...20mins..sigh...but since that was one of the major attractions and i knew we wouldn't be covering much, yup, we lined up...all i can say is that it was worth it...so magical..umm, Gabe missed it coz he fell asleep.

Next stop, It's a Small world, coz i saw the words "boat" on the map and it didn't say babies weren't allowed...had to queue for 15mins, not too bad, it wasn't hot, just perfect...once inside, i was super excited...looked like fun...Gabe was awake by then, so he caught the action too, and was so happy in the boat, looking at all the lights and dolls moving...this ride was so worth it, all the dolls and details were so colorful and nice...

Next, we walked around abit, got some drinks and when we checked the time, it was already 3pm, so we decided to head to the hotel to check in first then head back out in the evening for the Parade...covered only 2 places and already tired...

The room...oh,the room...simply beautiful..the bed, so so comfy, pillow so nice to sleep...dreamland...Gabe liked the bed too, coz once i put him down his fingers kept scratching the bedsheets and he was already rolling around. It's an Alice in Wonderland room, coz the theme was..yes, that...the wallpapers were characters from the story, there was a picture frame too...i think i want my bedroom to resemble something like that next time..Hubby said OK.

Gabe refused to sleep coz he had his nap earlier, so he just rolled around and played with his Winnie the Pooh handphone we got him earlier. He did fall asleep at 5.30pm before we headed out again.

Dinner we decided on ramen at China Voyager. Not bad actually. Gabe ate his mIckey donuts which he loves. We managed to catch the night parade in time...wow, it was really really good..Gabe was so noisy shouting away and moving around while Terry carried him in the carrier...excited i guess...

Since he wasn't tired, we figured we could go for the Jungle cruise ride which turned out to be nice and relaxing. That was our last ride for the trip...Gabe couldn't go on any others anyway...so we stopped by for Mickey shaped waffles (yummy)..and headed back to the hotel to sleep. Unfortuntely the rascal had too much fun he kept waking up at night, tossing n turning..think he was over active earlier, so next time i'll need to be smarter...

It was so sad the next morning...we had to say goodbye to the lovely room...i dun tink Terry will agree to stay there again..sighhhhh....

But it was a good outing, Thank You hubby, you are wonderful indeed. A loving Husband & Father...we love you so much for loving us so so much.

P/S: Grandpa & Grandma, you wan go Disneyland???????

In the car having brekkie..me super happy


We're at the hotel lobby


Daddy taking care of Gabe...






The room from doorway


Our lovely beds!!


There's a huge sofa




His Majesty


The sink. What i love is that the toilet, bath n sink areas are all separate








Our room view of the Sherwood Garden


My 2 Guys


His Majesty again


Can u see his new handphone?


The Hubby looking handsome:)


Train station right behind our hotel


Majestic hotel


We're Here!!!
























It's A Small World.....








































Mickey Donut is Yummy




Yeah!!!!!! What a day...u enjoyed too right Gabe? Daddy..we'll come back here again to stay????