March 2013 Doc Update

Gabe had his doc check up and everything looks good, his weight is up again to 7.96kg....when i saw that i was so relieved. And Dr H was very pleased, so all looks set to proceed on the 23rd April for his catheterization. Unless Gabe has a fever, then the procedure will go ahead as planned. Dr H says that the schedule of the actual surgery after the catheterization is uncertain because he will need to discuss Gabe`s situation with the surgeon and many surgeries have already been scheduled. So there will need to be some planning and depending on how urgent Gabe`s case is. But Dr H did assure me that the maximum will be 2 months wait because since Gabe`s weight is increasing rather well and that could cause his pulmonary flow to be unstable, we do not wish for an emergency situation to occur. So, anywhere between 1-2 months wait for the surgery is ideal.

But my concern is that weight often fluctuates especially with toddlers. One minute they eat everyhting and the next they peck like birds. This is Gabe...recently past week, he`s been rejecting snacks and even lunch or dinner, he eats less than he did past months. So yes I`m terrified that he will regress and lose weight. I can`t go back to that since I`ve worked so hard to get us here. Some call me too worried and panicky, but i can`t help it.

Gabe has never been a big eater and i struggled so badly past year with his feeding, with so much pressure to make him gain weight. And here we are so so close. This operation i believe will be a major milestone for him. right now, he doesn`t have enough stamina to try to walk long or stand long and even in therapy it`s obvious. So i think once we get it done, he`ll be making bigger progress. It`s true you can`t force them to eat, but i sure can make sure he doesn`t get away with it too much. So now, i try to give him as much snacks as he can eat, and even lunch now i feed him earlier then top it up with milk after that. Then in the evenings, he eats at 5-5.30pm, then when i eat i try to give him abit, then 2 hours later he has his milk and biscuits.....crazy? Yes i think so, but no way we`re regressing, no way.

And yes i panic when he doesn`t finish his meal or rejects his milk...i`m entitled to it. And i have to try to outsmart this lil rascal.

Gabe, you`re stubborn, but fortunately for you, you have an even more stubborn and willful mother. You@re a lucky guy!