Gabriel On..the cheeky lil Boy

Before heading to bed tonight, i decided to take some pics of Gabe in his cute lil pyjamas...courtesy of Grandma. The lil boy was in a good mood, so managed to get some nice shots.

Quick update first, went to see doc on Wed, wound is OK, shunt flow is good also...and doc said lip color looks good...eg pinky, NOT purplish deep red...sigh, stupid me...So we have another appointment next Thursday, where he'll do an ECG and take his weight, so will update ya all then.

Meanwhile, the lil guy has been really really jibberish lately, seriously. He can go on and on and on, till both of us will just be like "sshhh Gabe"...Looking at him lately, i've just realised how much he's grown in terms of his development. He's so kay poh now, wants to grab everything plus he uses 2 hands alot now instead of 1. and when we carry him his back is much straighter and he holds his neck up long. Plus, he is sleeping so much better in the afternoons (cross my fingers this continues on), so i have at least 1.5hrs or more to myself now...At night, mostly he is a sweetie now. I tell him goodnight, see you tomorrow morning, Mummy loves u...then put him down. Mostly (90%) he doesn't fuss and just lies there n starts to play then fall asleep. You guys have no idea how long i've been waiting for this moment...phew....only thing now is the waking to feed past midnight, which he still does like 2 times....but i know we'll get there soon...Well done Gabe, you're a big boy now...Okiez everyone, presenting the many faces of Gabriel On..

We're Back Home

Sorry for not updating sooner, had my hands full past week. Gabe is finally back home with us. He was discharged on 15th Feb. It was a long 4 nights stay with him in the hospital. Bed so small n crampy, i could not sleep well at all.But all's good now, we're adjusting back to life in Tokyo. Gabe has lost abit of weight. when i carried him in the hospital, his poor body seemed so light n thin, broke my heart. He weighed about 5.7kg just before discharge. Previously before the incident, he was about 6.2kg. So now our goal is to fatten him up, but he seems to be having some problems drinking the amount he used to drink, so it's gonna be a slow one... But the upside is that he now can sleep without much assistance. Afternoon n morning naps, i put him on our bed and lie next to him. He'll play n whine, then fall asleep. Nights i just pat him abit after putting him down and he cries abit sometimes, but falls asleep in about 15mins..big big improvement compared to last time when i'd have to pat n rock n sing him to sleep. His neck muscles seems to have weakened slightly especially in the hospital.. when i carried him he seemed to have trouble holding it upright. I think it was due to the weight loss and probably a little weak after the surgery. Now though it seems to be improving much. He's definitely more sensitive after the op..not sure why. You cannot scold him at all, esp at night. He cries at any little scold or nagging.....pouts way way more. Yesterday we went for our first outing since coming back to Tokyo. Terry brought us to the Premium Outlet. Wow, it was huge and freezing as it was open air..I bought myself a Nike sweater and Terry got himself a pair of Adidas shoe...err Gabe ended up with nothing, that's coz he has too many already... I'm not feeling too well, having bad sore throat n cough. So ain't gonna do any outings next few days. Not wishing to fall sick esp flu as it'll pass to Gabe and he doesn't need to deal with that now, so hoping to get enuff rest n get well. Some pics.... This one was about 2 days after his op, we visited him and found him playing with his legs:)

All bundled up in 3 layers to go kai kai

His litte haven at home where we dump him to have some time out...

Hello everyone!!

Gabe Says.....

I am angry at Mummy n Daddy...that is why i decided to punish them this morning by not smiling at them...i just pretended they weren't there. Yes, this was the exact situation when we got there this morning....Gabe was wide awake, n quiet, subdued in fact...when he saw us he did not even give us any reaction...no smiles, no nothing...i thought it was due to the light sedation they gave him last night to sleep..but nope...i think he was seriously angry with us for ditching him last night....sigh.... While we were there i tried to play n sing, no smile..in fact he even pretended we weren;t there and found that playing with the white wire was more interesting than staring at us...sniff sniff...he's so cruel...i'm hurt..when the nurse spoke to him though, he smiled at her!!!!!!! Sigh..if only he knew how much i wanted to carry him last night and today...please dun be so cold toward me baby.... Doc has said tomorrow afternoon they will transfer him to general ward, so i'll be there in the morning..my bags are packed..yay, i get to be with my son now..

This pic, he's smiling a tiny bit, but that was after like countless attempts to play with him...

Hello Everyone!!!

We visited Gabe last night and he was fully awake...poor boy saw us n cried, prob overjoyed to see us and also to let us know how upset he was....

Err...if u look at the pics u'll notice he has his pacifier taped to his mouth...guess you know why lah....yes he cry too loud, disturb all his friends, so there goes...

While we were there, he kept scrunching u his face into his "ku pau" expression, hoping we'd pick him up...n kept whimpering.. had to sing n play to calm him down...poor baby...he had been up for about 3 hours when we got there so i guess he was getting tired too and wondering how come Mummy wasn't carrying him n patting him to sleep...i will baby soon i promise..here are the pics from last night and some videos..

A Wonderful Surprise

When we visited Gabe last night at about 7.30pm, we had a very big surprise!! He was awake....i was sooo happy. Once i called him, he started to lift his hand in response...even though it had a cast-like thing...the kind nurse on duty took it off and he held our hands and kept moving his arms...i sang to him n the cheeky guy smiled....though it was hard with the tube and tape on his mouth, but smiled he def did, twice....Some pics below of the lil guy....

This morning, we were informed by the doc that they will be removing his tube today, waiting for him to wake up first..so later this evening we'll see him and update u guys. If all is well, he can be transferred out to general ward on Friday...yay!!!!

I'm gonna hold my baby really soon...

Post op Pics

Visited Gabe this morning, still sedated, but oxy support lowered and they will try to take him off venti today or tomorrow depending on whether his support can be lowered further and he maintains his saturation. we're hoping soon so that he can be transferred out to general ward soonest and i can be with him there.

Kind nurse took some photos of the 3 of us, not too clear, but will have to do for now. The others i took this morning. When we say him last night at 7.30pm, he was on light sedation only, so he could hear us!! I sang some songs to him and nurse said he knows i am there coz his oxy levels went down and his little body kept moving alot;) so so happy..

You're well on your way to recovery baby, just abit more, stay strong yah...i love u sooooo much...

We Feel The Love

I am so glad & blessed to have such a caring and loving family. In times when i need reassurance and support, you guys have always been there. Especially since Gabe was born. We've gone through so many challenges right from his birth. You all have accepted him so readily and lovingly. I am sure he feels the love as well.

I am thankful for each and every one of you...without your love and prayers, i do not think we'd be strong enough to handle all these.

However, i dunno, i feel i have to get this off my chest. As many as there are of you who love Gabriel, there are a finger-few who i dunno..are totally ignorant or they just feel uncomfortable in the presence of a special needs child.

Sigh, for the sake of relationship, i shall not name names, though i very much intend to...
I have always known that Gabe may not be accepted by everyone in society. But it hurts when you realise that even some people close to you in terms of relations, do not accept him. Perhaps for some people i am mistaken, but the look i saw on their face said it all to me...Why wouldn't anyone want to love such an adorable n spirited baby? Does he really look that diferrent from us all? FYI, DS is not a transferrable disease...no matter how close contact you come into him, he wun bite, neither will you develop DS...

Anyhow it's a good thing we dun see you often, just maybe once a year. So be off with you ignorant people and i hope for your sake one day you will realise what an idiot you are.

But to the rest of you people who adore and love GAbe, THANK YOU for your love, we feel it all the way here in Tokyo in this freezing weather.

Today Gabe is stable, they will not be removing his ventilator yet, but have adjusted his oxy support down to 25% which is a good sign. His oxy level are good at 85-90%, blood pressure steady. He looks good too, sorry i did not take any pics today, will try to later when we see him again.

Love you all...